Creating a fake boxer:

Create a fake boxer whose first name begins with a "Z".  The boxer directory is alphabetical by FIRST name.  Coaches and volunteers will remember first names and faces before last names.  So, naming your play boxer Zeke will place him last in your directory.  All the fake boxers are last in your inactive directory and can be found quickly by entering "z" in the search box.  

To create your fake boxer, click on the “+” in the top right of the page.  A page with multiple sections opens up.  The first section is personal information.  The fields are self-explanatory but here are a few nuances.

To create your fake boxer, click on the “+” in the top right of the page.  A page with multiple sections opens up.  The first section is personal information.  The fields are self-explanatory but here are a few nuances.

If you are entering this information with the boxer present, take their photo.  If the boxer is not present, leave it for now.  See “Taking a boxer's photo”.

Name:  You can use their common name or their legal name.  Mike or Michael.  What they are called during workouts is best.  Remember, the system is sorted by first name so someone who goes by Jack but his real first name is Charles will be lost as Charles.  He should be "Jack "Charles" Smith". 

Nickname:  Fun boxing nicknames. Maybe what their dad or mom called them.  Maybe a school nickname.  Be creative.  Not a required field so if you are not sure, move on.  Good information to update during the boxer introduction meeting.

Height:  IN INCHES.  5’8” is 68 inches.

Birthdate:  YEAR first. Click on the calendar icon.  Click on the dropdown icon next to the month & year.  Pick the year.  Then use the “< >” to pick the month and then the day.

Date of diagnosis:  Some people know exactly when they were diagnosed.  But most don’t.  Month and year... not day.  First is the year, then the month.    Close is good enough.  Closer is better.  This date is used for time-since-diagnosis calculations.

The date of first symptoms is a fuzzy field.  If they don’t know or remember the month, ask what season?

Shoe Size:  The system uses the North American shoe manufacturers shoe sizing table to look up a boxer's foot length for the standing jump.  Good question for the boxer introduction meeting.

Emergency Contact:  Self Explanatory.

General Health:  This section is for non-Parkinson’s health issues. Just a quick check the box list with an “Other” for anything we missed.

Heart Health:  General heart conditions. 

Parkinson’s Therapeutics:  Parkinson’s specific medications plus DBS.

Assistive Devices:  Self-explanatory.

Military:  Self-explanatory.

Member & Location:  For now, you shouldn’t need to do anything here.  Later on, this is where you give a remote gym permission to view a guest boxer’s assessments and even transfer a boxer to or from your gym.

BwP Membership:

• Research:  Boxers opt-in or opt-out of the PARS research.  Most boxers say sure to this.  Coaches can change a boxers choice at any time.
• Media Release:  You have 3 levels of release:  1) Anytime.  You can post any photo on Facebook for non-commercial or marketing use.  A marketing or commercial use would require special permission.  2) When they are in the background and not the focus of the picture, or 3) not if they are anywhere in the picture.
• Privacy Policy:  Self-explanatory.

The boxer's photos are important.  They help coaches identify Bob from Bob or Bob in the fighter directory.  The give the boxer an identity. for several reasons.  You will use their photos to find them in the Boxer directory quickly.  

Right now, the directory shots are for the directory and in the header for reports, etc  In the future, a boxer's photo might be used to create a wall poster of your boxers or a memorial poster for the fights you've lost, We might do something like training card.

Recommendations. 

• Make the headshot from mid chest. It feels like you are right in their face.  You can have them put their fists up or even take the photo in their gloves.  
• Pick a common photo format for a consistent photo directory.  Use the same background such as a white wall or your Rock Steady banner.  
• The headshot prints on their boxer assessment report so make it a good one.

We may have hundreds of manila folders with information for your boxers beginning when you opened years ago including all the boxers who have quit or passed away.  For PARS, only capture information for boxers who are active.  Capturing the historical information is very cool and powerful.  Documenting these records from two years ago or even six years back is important. They give a sense of value to those earlier assessments.  Mike Sellars' assessments go back to July of 2017.  Cool!  

Capturing historical assessments is easy and very fast.   To reduce the workload, divide the folders up between coaches and volunteers.  If you are a Lone Ranger gym and you are your only resource, enter the fighter information for everyone but not the assessments... yet.  After you have your introduction and update their general information, you will set up their next assessment.  Go back and enter their previous assessments from paper the night before their first PARS assessment.  Easy peasy.  This spaces the work out over time and makes it very manageable.  Using the Quick forms... specially designed quickly enter a fighter's paper records.  Each assessment takes about 4 minutes to enter. So, a fighter with 4 historical assessments will take about 16 minutes to capture their historical information.

Using the quick forms, you go down the PDQ, FAB, S2S and TUG paperwork very quickly. There is a lot of information in PARS that is not in the old paperwork.  You can use a placeholder value and fix it during the boxer introduction meeting.  And there may information on the paper forms that is not in PARS.  Capture notes in the margins, on the back, or written between the lines using the Coach Notes feature.  

Values you will want to use a placeholder for:

• First symptoms date
• Shoe size
• Military
• Research option
• Media option
• Turn 360 steps, &
• Standing jump distance.

The secret sauce is in the standardized in-person assessments. To get rid of coach doubts and to be fair to your boxers, the first assessment should be a fake boxer assessment.  Ask a fellow coach or one of the volunteers to be your boxer.  Coaches can assess each other or you might find a boxer that will stay after the workout.   

Move to the Assessments tab.  Look for the add an assessment icon. in the assessment window.  Click the icon and a window to choose paper or in-person.  Choose in-person.

You will see the assessment menu of 5 sections.  Parkinson's Profile; PDQ; FaST; Postural and Observations. All modules are blue and they all say Pending.

1. Choose Parkinson's Profile:  This is a group of 5 sections listing of common PD symptoms.  Whenever you choose a symptom, a severity slider.  The symptoms severity slider goes from 0 to 10 and from insignificant to severe.  You have to be careful in asking the severity for their symptoms... some will say an 8 for everything. How to handle this later,  The Parkinson's Profile has 5 sections:  Tremors, Posture and Gait, Assistive Devices, General Symptoms; and Parkinson's PLUS conditions.  As you complete each section it turns greens and says Complete.
    
2. PDQ-32:  The PDQ section puts the tablet in the boxer's hands so they can answer the questions.  The PDQ is in a large font so they can read it without their readers.  The module takes them 1 question at a time through 32 questions.  We do not use the 3 questions on stigma because the boxers almost universally answer them "Never".  We do not use the questions on body because PARS does a much better job in the fighter information section and the standard questions could be caused by PD, or age, or a stroke or arthritis.  Useless.  There is a timer going in the background.  When they are finished, the tablet says to hand it base to the coach.  It ends with a PDQ summary so the coach can review the results with the boxer.
    
3. FaST:  The next module is FaST; Fullerton, Sit to Stand; and TUG.  There are 12 tests and each 1 has their own page.  Each page includes:  In blue, what the coach should say to the boxer; The help icon gives the full instructions, and timers where needed.  If this is a reassessment, the boxer's first score and most recent score are displayed.  Scoring is pretty much like the paper versions except we count the steps in turn 360 and record the distance for the standing jump.
    
4.  Posture:  PARS includes a front and side full length photos of the boxer.
    
5. Observations:  Miscellaneous information. 

When you finish all 5 modules you are presented with the physical assessment summary.  This for the coach's information.  There will be a coach's Consultation with the boxer as a separate step.

The coach/boxer/family consultation is so invaluable.  And PARS gives coaches the tools to understand the results in easy to explain and understand graphs and reports.  BwP has worked very hard to adjust the algorithms so they reflect how the progression of PD plus aging impacts their daily activities.   

When you get good at reading the insights, the QoL summary and the physical assessment you can look at the report and analyze a fighter without m  eeting the boxer.  

The PAPI, Parkinson's & Aging Progression Insights give coaches the tools and credibility to talk frankly with the boxer and their family about this assessment and trends you observe.  The numbers speak for themselves so the focus in not on the coach for bad news.  It is what it is.  But when there is good news, the boxer and coach can celebrate together.  

Progression.  By plotting the results over time, the coach and boxer can see the trends.  This is very important as you work with your boxers on plans for them.  Remember:  "Even is Winning! EiW!".  We show boxers their PD and aging progression more clearly than their neurologist and they cannot get this information anywhere else!

The fighter has access to their boxer assessment report through the Fight Club so they can review and share their assessment history with family or their medical team.

PARS uses the data to build insights... new ways to look at the assessment.

Note that in the top right of each graph box is a change value.  

• It is red if bad and green if a good change.  In the S2S a lower number is bad and for the TUG a lower number is good.  If it is good, PARS says it is EiW!  Even is Winning.

1. PARS Composite Graph:  The graph overlays the PDQ survey information and the coach administered physical assessments.  The PARS Composite Score is 1 number to describe each of boxers, If a coach says a boxer is a 63 and another boxer is a 90, the coach has an instant general understanding of where the boxer is.  If the physical score is high and the PDQ is low, there may be anger, frustration, depression,  If the PDQ score is high and the physical is low, they may be in denial.  
    
2. Balance Graph:  PARS uses 5 key balance test scores to generate a balance score.  A low score in one or all of the tests causes the balance to fall.
    
3. Physical Assessment:  Scores for the physical assessment including FAB 8, S2S & TUG.  FAB 8 because we do not use FAB 9, Walking with Head Turns, and FAB 10, Reactive Posture Control, because with RSB test administrators the results are too unreliable. The graph gives you top line assessment score plus scores for the FAB 8, S2S TUG.  The S@S & TUG can give bonus points so they can go over 100%.
    
4. Quality of Life:  The PDQ questions are in 8 categories:  Mobility, Daily Living, Communication, Cognitive, Social, Emotional, Stigma and Body.  We do not use Stigma because everybody scores 100 and we don't use body because you can't separate body aches due to aging from those from PD.  The graph give you the QoL top line plus Mobility and Daily Living, Communication and Cognitive, and Social and Emotional.  We combine similar categories to reduce the number of lines on the graph from 7 to 4.
    
5. Turn 360:  PARS adds the turn left and turn right steps to create a single number.  The red line is at 8 steps, considered the target number of steps.
    
6. Standing Jump.  BwP recommends a cloth 96-inch measuring tape because some boxers will outjump a 60-inch tape, Also there is some confusion as to measure toe to heel or toe to toe. We didn't find any documentation on this.  We chose toe to toe because that is how far the boxer's nose moved and it you go tor to heel, some boxers who jump less that their foot length would have a negative jump.  A boxer with a 9 -inch foot jumps and their heel does not cross the line.  toe to heel gives a negative number but toe to toe gives a positive number. If you didn't write down the actual distance on the paper assessments, you can put a zero, or if the scored a 3, they jumped 1 times their foot length, about 8 inches for most women and 10 inches for most men.  And if they scored a 4, you can put 16 inches for women and 20 for men.  The first real assessment in will give a correct number and you will know that the earlier numbers were not accurate.  The green line is a moving representing 1X the boxers foot length and the red line moves to represent 2x the foot length.
    
7. Timed Up and Go:  The red line is at 13.5 seconds considered high fall risk.  The green line is considered the target time for most people, 8 seconds. 
    
8. Sit-to-Stand:  The red line is a floating line representing the target for this boxer by gender and age. 
    
9. The BMI graph is for your information.    

The Quality of Life Summary is a PDQ report. 

• PDQ Score:  The boxer's top line score. 
• If the boxer has previous assessments, PARS shows you how this assessment compares to their first assessment and their last assessment.
• The Check Answers button shows you the most recent PDQ answers... question by question.
• Test Insights tell you how many questions they answered by answer.  It shows you the distribution of answers.
• The six circle graphs are the scores by category.  Remember that PARS does not use the questions from the Stigma and the Body categories.
• The time graph shows the trend over time.  

This is the heart of PARS. The physical assessment to measure the functional capabilities and limitations of a boxer.

• The top 4 circle graphs.  The FAB 8 score.  The S2S Score.  The TUG score.  And the PARS consolidated Physical Assessment score. For each the Boxers first score and last assessment scores are compared to the last assessment.
• Each test is displayed on using a horizonal bar chart.  Tif the test has variable they are listed to the left.
• There is a blue button at the top which shows you the individual complete FAB scores.

Understanding the physical test scores helps with reading the PARS Insights. You know where the data for the insights.